The Unknown Puts Offspring At Risk Of Sickle Cell Disease

Most Connecticut residents who carry a trait for sickle cell disease don’t know it, resulting in thousands of people unwittingly risking having a child born with the debilitating illness, according to sickle cell disease specialists.

The reasons for this vary: there’s a lack of knowledge about results of newborn testing for the trait, parents don’t always convey test results to their children, gaps in state record keeping, and state records that identify people with the disease or trait only go back to 2012. Also, doctors typically only test for the trait when a patient requests it. And people often don’t know they can have the trait even when sickle cell disease isn’t in their family.

Race, Economics, Environment Continue To Drive State’s Asthma Disparities

Kamyle Dunn used to sleep with her hand resting on her mother’s chest so she could feel it expand and contract and know that her mom hadn’t stopped breathing during the night.

Dunn’s mother, Maria Cotto, has long had severe asthma. Dunn inherited the condition, though she has mostly grown out of it as an adult. Now, Dunn’s 12-year-old son also has severe asthma.

With 1 In 3 College Students Nationwide Facing Food Insecurity, Colleges Respond

Leslie Argueta is a 21-year-old first-generation college student at Goodwin University who plans to work with children and families in need.

It’s a profession for which her own life experience has prepared her. When Argueta was 3, she emigrated from El Salvador with her family, settling in East Hartford. In Argueta’s first year of college, a car accident left her mother unable to work for a year, forcing the young college student to divide her time between her studies and hospital visits. “Me and my brother had to provide a little bit more for our family,” Argueta said.

Refugee Family Nurtures Culture In Hartford Community Garden

On a September weekday morning, Maaye May removes the lock and chain from one of two gates and enters the Niles Street Community Garden in Hartford. A 6-foot high, black-metal fence encloses the garden, which measures half the size of a football field. Within the gated oasis, the city surroundings slip away as bees, birds, flowers, fruits and vegetables begin to dominate the senses.

Tourette Syndrome Awareness Rises After Spike In Reported Tics And Billie Eilish’s Reveal Of Her Childhood Diagnosis

As a fifth grader growing up in Stratford, Bridget Phelan-Nelson used to shout the same string of obscenities every morning. “I would repeat it over and over on my walk to school so I wouldn’t say it at school,” recalls Phelan-Nelson, now 39. She also had multiple motor tics throughout middle school and high school, including a nose twitch that earned her the nickname “Bunny.”

Even though motor and vocal tics are telltale signs of Tourette syndrome, a neurological condition characterized by involuntary, repetitive motions and sounds, Phelan-Nelson wasn’t diagnosed with Tourette until she was 16 years old.

Access And Insurance Continue To Be Obstacles To Gender-Affirming Surgery in Connecticut

Since coming out as transgender in 2015, Lillian Maisfehlt has spent $10,000 on electrolysis and had voice and hormone therapy and breast construction. She also spent 10 days in Pennsylvania recovering from vaginoplasty, an operation that few surgeons perform for transgender women in Connecticut.

Maisfehlt, 47, of Chester, said the pain, cost and occasional fights with her insurance company for reimbursement have been worth it.